Tuesday, November 6, 2012

CVID Update!

Wow! I have not been very good about keeping this blog updated with the ups and downs of having CVID! The past year has been a roller coaster ride. That may be putting it mildly. LOL!

Where to begin... well I am no longer working due to the doctor taking me off work.  I continued to get bronchitis, sinus infections, and pneumonia. I had decreased my hours to half days days and then the doctor felt it best for me not to work.

So... I started the long process of disability. I am still on the long process. I was denied and now I am awaiting the hearing level, which I was told could take as long as June of 2013. I am using a company to help me with this called Allsup! Wish me luck!

Now on to how I am feeling... Every day is different. Some days I feel pretty good like I could take on the world. Most days are filled with fatigue, fighting whatever infections I have at the time (ie: right now sinus infection), and trying to function like I am GREAT!

I still have amazing support from my husband and daughter. Who truly are amazing and understand. It really sucks missing special occasions like weddings, graduations, etc., because I either don't feel well enough to attend or I am nervous that I might get an infection while being around so many people.

I will try to keep you (my wonderful followers) up to date more in the future!

I am a fighter and I will keep on fighting! :-)

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